A spokesperson for Birmingham Children's Trust said following a request from the family it was reviewing the decision made about support for Tilly.
In this episode, James Gallagher speaks to Dr Chris Ponting about the latest DecodeME results, which point to a strong genetic component to ME. And Professor Rosemary Boyton outlines the ambition behind the new Rosetta Stone study, designed to build a detailed evidence base of shared biomarkers across ME and Long COVID.
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Given the uncertainties around the potential number of claims, an expert has questioned why the NHS didn't choose a contract that would have allowed it to "review the situation" once more reliable data was available.
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FT Digital Edition: our digitised print edition
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